Academic Centers
The American Journal
of Bioethics & bioethics.net
http://bioethics.net
This is a University of Pennsylvania Center for Bioethics site that provides
lots of links to useful background information on various topics in bioethics.
Bioethics & Health
Care Ethics Resources on WWW
http://www.ethics.ubc.ca/resources/biomed/
The Centre for Applied Ethics which sponsors this site was created by in 1993
by the University of British Columbia Board of Governors. Categorized links
such as "Ethics Institutes & Organizations", "Publications"
and "Other Related Institutes & Organizations" are just a few
of the areas addressed at this site.
Center for Bioethics:
University of Minnesota
http://www.bioethics.umn.edu/
The goal of the Center and the links provided at this site is designed to help
students, professionals, policy makers and the public in dealing with the ethical
issues that can be found in health care and the life sciences.
Johns Hopkins University
Bioethics Institute
http://ww2.med.jhu.edu/bioethics_institute/
The Bioethics Institute was established in 1995 as a way to promote research
in bioethics. In addition to information regarding the Institute, this site
also has related links to other bioethics information sources.
Kennedy Institute of
Ethics
http://www.georgetown.edu/research/kie/
The Kennedy Institute of Ethics is a teaching and research center offering ethical
perspectives on major policy issues. It's noted as being the "largest university
based group of faculty members in the world devoted to research and teaching
in biomedical ethics and other areas of applied ethics".
National Reference Center
for Bioethics Literature
http://www.georgetown.edu/research/nrcbl
This has the reputation of having the world's largest collection related to
ethical issues in medical and biomedical research. It is intended to be a resource
for the public as well as an in-depth research resource for scholars.
The Online Ethics Center
for Engineering & Science
http://onlineethics.org
This site is designed to provide engineers, scientists, and science and engineering
students with resources useful for understanding and addressing ethical issues.
This Center is virtually located on the campus of Case Western Reserve University.
Poynter Center: Indiana
University
http://www.indiana.edu/~poynter/index.html
The Poynter Center is an endowed ethics research center at Indiana University-Bloomington.
The Center in recent years has focused on bioethics, religion, teaching, ethics
and professional ethics. This site also provides numerous links dealing with
general, research ethics and research policy information.
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Events
Religion and Bioethics:
Controversies about Human Cloning and Stem Cell Research
http://www.relst.uiuc.edu/Thulin/ThulinSp02.html
A lecture by James F. Childress, the Edwin B. Kyle Professor of Religious Studies
and Professor of Medical Education at the University of Virginia will discuss
the controversies surrounding human cloning and stem cell research at the Levis
Faculty Center on the University of Illinois campus. Dr. Childress is also the
Director of the Institute for Practical Ethics.
University of Illinois
Center for Advanced Study Events: The New Biology
http://www.cas.uiuc.edu/newbiology.html
The Center for Advanced Study (CAS) brings together scholars from diverse disciplines
and backgrounds. One of the programs sponsored by CAS in the 2001-2002 academic
year was entitled The New Biology: Issues and Opportunities
Where are We? Where are
We Going?
http://www-admin.med.uiuc.edu/Advancement/LawMed/agenda.htm
A symposium presented by the University of Illinois College of Law, the University
of Illinois College of Medicine at Urbana-Champaign, the Institute of Government
and Public Affairs, and the Nursing Institute. One topic of discussion are bioethical
challenges and health care reform.
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Government Agencies
Bioethics Resources on
the Web: National Institutes of Health
http://www.nih.gov/sigs/bioethics
Background information and positions on various bioethical issues are provided
at this site. Resource links are for those interested in bioethics, and they
include National Institutes of Health data as well as information beyond that
organization.
Ethical, Legal and Social
Implications of Human Genetic Research (ELSI)
http://www.genome.gov/page.cfm?pageID=10001618
ELSI was established as an integral part of the Human Genome Project. The idea
of this program was to identify, analyze and address the ethical, legal and
social implications of human genetics research.
The President's Council
on Bioethics
http://www.bioethics.gov
The National Bioethics Advisory Commission was created in a 1995 Executive Order
to provide advice and make recommendations to the National Science & Technology
Council. Some areas of investigation include thing like human research and genetics.
Archived reports and working papers, such as "Cloning Human Beings"
is available full text at this site. A link to the National Bioethics Commission
can also be found at http://bioethics.georgetown.edu/nbac.
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Organizations & Non-Academic
Sponsored Centers
Access Excellence: National
Museum of Health
http://www.accessexcellence.org/AB/index.html
A site that covers information on issues and ethics dealing with scientific
breakthroughs that have moved biotechnology forward. Information on the practical
applications of ethics, career links, and the history of biotechnology can also
be accessed at this site.
American Society for
Bioethics and Humanities (ASBH) Links
http://www.asbh.org/links/
This site offers a selective but extensive list of bioethics links. The resources
are categorized by topics such as "Ethics and Philosophy", "Government
and Public Policy" and "Law" to name a few.
The Center for Bioethics
and Human Dignity (CBHD)
http://www.cbhd.org/
The goal of The Center for Bioethics and Human Dignity is to address pressing
bioethical topics including managed care, genetic intervention, and reproductive
technologies. Links to numerous Internet sites plus Issue Overviews and Bibliographies
are also available.
The Hastings Center for
Bioethics
http://www.thehastingscenter.org/
The Hastings Center main focus is the fundamental ethical issues in health,
medicine and the environment and how these issues affect people. In addition
to educational opportunities and research programs offered at the Center, their
Morrison Library offers bioethics related information online.
Midwest Bioethics Center
http://www.midbio.org/
The Midwest Bioethics Center is a community-based ethics center founded by an
attorney, a physician and a philosopher. Case studies, links to bioethics information
sources as well as information about the Center's services can be accessed at
this site.
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Publications
Balancing Business and
Science and ImClone
http://www.the-scientist.com/yr2002/dec/prof_021209.html
John Mendelsohn, president of the University of Texas MD Anderson Cancer Center
and developer of C225 (Erbitux) was called before members of the House Committee
on Energy and Commerce to answer questions about his role in ImClone Systems.
The focus of the inquiry was in regard to the clinical trials that led to the
FDA issuing a "refuse to file" letter for Erbitux, an act which caused
ImClone's stock to plunge. Is it possible for biomedical investigators to balance
the pursuit of profits with the quest for honest science? Did Mendelsohn's financial
stock in the drug cause a conflict of interest? This December 9, 2002 article
from The Scientist discusses this issue and attempts to provide answers
to those types of questions.
Berkeley's Research Pact
with Company May Not Be Renewed Next Year
http://chronicle.com/daily/2002/12/2002121704n.htm
A Swiss biotechnology company, Torrey Mesa Research Institute, a division of
Syngenta, may not be continuing its partnership with the University of California
at Berkeley in the future. Collaborative efforts between Berkeley and Torrey
Mesa began in 1998, and this article from the December 17, 2002 issue of The
Chronicle of Higher Education discusses why the two may end their research
relationship. This partnership between industry and academe was considered controversial
from the start due to the fact that Torrey Mesa is a major player in developing
genetically engineered crops.
Bioethics: Ingenta
http://www.ingenta.com/isis/browsing/AllIssues/ingenta?journal=pubinfobike
://bpl/biot&startyear=2002&WebLogicSession=PJEN1OngGDBS94mAOfvD
|-5659241230871430413/-1052814329/6/7051/7051/7052/7052/7051/-1
Online access is available through Ingenta to the journal Bioethics.
You can access the current volumes as well as those as far back as 1997. The
articles are displayed in a PDF format, and the full text is free of charge.
Bioethics Information
Retrieval Project
http://www.georgetown.edu/research/nrcbl/ir/bioline.htm
Search PubMed or LOCATORplus to access links bioethics information. Don't know
how to search PubMed? This site provides tips on effectively accessing information
in this database. If you don't want to search the database and have some time,
you can request a custom search.
Creating a Child to Save
Another
http://www.chicagotribune.com/technology/chi-021029bioethics
,0,162107.story?coll=chi%2Dtechnology%2Dhed
Should people be allowed to create a child in order to save another? The U.
S. government does not even consider this to be an option, but the British panel,
The Human Fertilization and Embryology Authority is beginning to wrestle with
this and other ethical issues surrounding the area of embryo science.
Gene Therapy Hits Obstacle
(free registration may be required to access)
http://www.the-scientist.com/yr2002/oct/maher_p26_021028.html
Doctors in France used gene therapy on a child to combat a deadly genetic disease.
The treatment was working well for about 3 years until the therapy probably
led to a leukemia-like syndrome in the child. Gene therapy trials were put on
hold in many countries, and experts urged the U. S. FDA to resume the trials.
Decisions regarding gene therapy are still on hold in the U. S., but the U.K.
continues to do testing with closer monitoring. This article published in The
Scientist explores whether the benefits associated with gene therapy are
worth the risks.
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Resources
Bioethics Case Studies
http://www.mhhe.com/biosci/genbio/olc_linkedcontent/
bioethics_cases/index.html
Ronnee Yashon, an expert in teaching genetics, ethics and law, developed the
20 different cases studies for this McGraw-Hill site that includes topics ranging
from cloning to organ donation to DNA forensics.
Yashon has written two books,
Case Studies in Bioethics I and II, that have been used at all
educational levels. Her new book, Landmark Cases for the Science Classroom
focuses more on the legal aspects of science.
Bioethics at Iowa State
University: Classroom Resources
http://www.biotech.iastate.edu/Bioethics/classroom_resources.html
This bioethics site contains numerous bioethics case studies. Topics include
cases in agriculture, animals, biotechnology, humans and research ethics, just
to name a few.
Biotech Bioethics on
the Web
http://www.upekkha.net/
Numerous links in the area of bioethics are available at this site. These links
are categorizes in areas such as Academic Ethics Groups, News and Information
on Biomedical Research, Patent/Consumer Groups and Educational and Policy Groups.
Recent additions are listed in their own section too.
Biotechnology & Ethics
Electronic Resources
http://www.unf.edu/~mgillis/general.html
Marin Gillis, a Department of Philosophy and Religion at the University of North
Florida, has compiled an annotated list of biotech and biotech related Web sites.
Finding Bioethics Information
http://gateway.library.uiuc.edu/bix/subjguides/bioethics.htm
An online guide, developed by the UIUC Biology Library, designed to help searchers
locate print and electronic resources in the area of bioethics.
HealthWeb: Bioethics
http://www.siumed.edu/lib/hw/Bioethics.html
HealthWeb is a collaborative project between the Southern Illinois University
Medical Library and the HealthWeb project. It is designed for educational purposes
only, and links to various evaluated bioethics resources, including court decisions,
electronic publications and conference information can be found at this site.
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